Help

Possible Solution

As I have said many times, I am always searching for anything that may help to minimize or eliminate symptoms of Interstitial Cystitis (IC) and/or other chronic diseases.  I came across a post from a person with IC on the website patient.info.  The article was written in September or October of 2018.  The link below will take you to her post.

Patient Testimony Link

Again, please remember that I am not a medical professional.  The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment.  All content, including text, graphics, images and information, contained on or available through this web site is for general information purposes only.

IC ClassroomSome of you may be familiar with this drug the person is referencing, but I had not heard of anyone providing his or her own personal experience with Gabapentin in relation to IC.  This person said that Gabapentin was the solution that worked for her and successfully gave her relief from her IC symptoms.  She felt so passionately about her experience with this drug that she wanted anyone suffering from IC to know about Gabapentin.

Trust me when I say that if I ever find something that gets rid of or minimizes my symptoms, I will be shouting it from the roof tops (or I could just post it on my blog which probably would make more sense 🙂.  I, too, would want everyone to know that I got relief!

She said she had been suffering from IC for 3 years.  She tried everything from stretching her bladder to trying bladder instillations to taking amitriptyline & antibiotics but was getting no results.  She said her doctor prescribed her Gabapentin.  She started taking 300 mg once a day for 3 days, then two tablets for 3 days, and then ultimately three tablets.   She said that after only a half an hour of taking the first tablet she felt an improvement.  By the time she took 3 per day, her pain and urgency completely disappeared for the first time in 3 years!

According to her, this drug is usually used for epilepsy but is also used to treat neuropathic pain (long lasting pain caused by damage to nerves).  Your medical professional should be able to tell you more information about Gabapentin.

She said this drug has been life changing, and she feels as though she has her life back.

I did reach out to the author of the post (Jacqui).  I asked her for an update.  If she responds, I will ask if she would be a guest writer on my blog or I may ask her to participate in a fishbowl interview.  I will do a message blast if she responds!

Let me know if anyone has had success with this drug or any other pharmaceutical.  I wanted to make sure I got this person’s message out!  As always, thanks again.

8 comments

      1. I am sorry to hear that nothing is helping. The last few days I have had a really bad flare-up. It can be very discouraging. I just have to remember it is okay to feel down from time to time as long as I don’t let that feeling overtake my life. I had to rely on my support system this week.

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    1. Wow, thank you for your comment. I just have not found anything that has really helped me. If you could give me a couple of your top things that helped I would greatly appreciate it. I am now trying aloe vera capsules. Just started a couple of days ago.

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      1. I know it can be a struggle. Aloe Vera can help some, but I find it more effective for GI inflammation. You might have better results. The most effective thing I’ve found is quercetin. I also had great success with stinging nettle tea. It can also lower blood pressure, though so it didn’t work for another condition I have. I also got really good relief from oxybutinin, which is a prescription med that’s been out a long time and has a pretty safe track record. I still use it sometimes when my histamine load is too great for the quercetin to combat. If you’ve tried all those approaches, let me know what the results were. There are some others I could recommend. Have you explored whether your IC is mast cell related?

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